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CIHR developed these draft guidelines with the advice of its Privacy Advisory Committee (PAC), bringing the perspectives of the following groups:

Privacy Commissioners 
David Loukidelis
Information and Privacy Commissioner of British Columbia

(Privacy-enhancing Technologies) 
Debra Grant
Senior Health Privacy Specialist
Information and Privacy Commissioner/Ontario
  
Research Ethics Boards  (REBs) 
Sharon Buehler 
Co-Chair, Research Ethics Board, Memorial University

Don Willison
(CIHR-funded research on REBs)
Scientist, Centre for Evaluation of Medicines, McMaster University
 
Health Researchers 
Charlyn Black (Health Services Research)
Director, BC Centre for Health Services and Policy Research

Colin L. Soskolne (Epidemiology)
Professor, Department of Public Health Sciences, University of Alberta

Voluntary Health Organizations 
Roy West
Co-Chair, Science and Research Committee, Health Charities Council of Canada

Patients/Consumers
Mary Vachon
Psychotherapist and Consultant in Private Practice
Professor, Depts. of Psychiatry and Public Health Science, University of Toronto
Clinical Consultant, Wellspring

Phil Upshall
Chair, Canadian Alliance on Mental Illness and Mental Health
President- The Mood Disorders Society of Canada

Policy-makers 
Heather McLaren
Director, Legislative Unit
Manitoba Health

Data Producers/Custodians
Joan Roch
Former Chief Privacy Officer, CIHI
Privacy Consultant
 
Michael Wolfson
Assistant Chief Statistician
Statistics Canada

Aboriginal Interests
Bronwyn Shoush
CIHR Institute Advisory Board Member- Institute of Aboriginal People’s Health,
Director, Aboriginal Justice Initiatives Unit, Alberta Solicitor General
 
Health Service Providers
Denis Cournoyer
Associate Physician, McGill University Health Centre
Associate Professor, Dept. of Medicine and Oncology
McGill University

Ethics/Law 
Brent Windwick
Partner, Field LLP
Former Executive Director, Health Law Institute

Bartha Maria Knoppers
Canada Research Chair in Law and Medicine;
Professor, Public Law Research Centre, Faculty of Law, University of Montreal
 
Ex Officio Members

Interagency Panel on Research Ethics (PRE):
Pierre Deschamps, PRE member 
Member of the Canadian Human Rights Tribunal

Social Sciences and Humanities Research Council (SSHRC)
Christian Sylvain (alternate: Jocelyn Girard)
Director, SSHRC Corporate Policy and Planning

National Council on Ethics in Human Research (NCEHR)
Fern Brunger, NCEHR Member
Assistant Professor, Health Care Ethics, Faculty of Medicine
Memorial University

Health Canada
Ross Hodgins/John Horvath
Privacy Division
Information, Analysis & Connectivity Branch, Health Canada

International Advisor   
William W Lowrance
International Consultant in Health Policy and Ethics, Geneva, Switzerland
 
Canadian Institutes of Health Research – Ethics Office
Patricia Kosseim - Chair
Former A/Director, Ethics Office
General Counsel, Office of Privacy Commissioner of Canada

Sheila Chapman
Senior Ethics Policy Advisor

Mylène Deschênes
Senior Ethics Policy Advisor

Sylvie Burion
Project Officer