CIHR Privacy Best Practices (PBPs) - Initial Implementation Working Group (IIWG) 2005-2007
Working Group Mandate
(updated September 2007)
- To bring the perspectives of key target users of the PBPs.
- To provide advice or strategies for the Ethics Office on user engagement and uptake during this initial implementation phase.
- To provide a sounding board for the research community for its comments on the PBPs.
- To advise and assist the Ethics office on developing mechanisms or tools for an in depth examination of the use, usefulness and impact of the PBPs.
- To provide recommendations to the Ethics Office on:
- improvements to the PBPs (but not to include involvement in revising the document); and
- a longer-term implementation strategy.
Chair: Sheila Chapman (CIHR Ethics Office)
Deputy Chair: Margo Farrren (CAREB Board member)
Members: Susan Hoddinott (CAREB member; University of Western Ontario); Susan Sykes (CAREB member; University of Waterloo), Richard Carpentier (NCEHR Executive Director), Mike Enzle (An invaluable contributor to the first phase of the IIWG's work; NCEHR Education Committee Chair; University of Alberta), Thérèse De Groote (SRE; liaison with PRE, NSERC and SSHRC; with further representation to be confirmed from SSHRC); Karen Szala-Meneok, (CIHR-funded Researcher; qualitative methods; McMaster University, Ontario)
Meetings: As needed. Primarily teleconference and email. One face-to-face meeting per year if budget allows.
Period of Mandate: September 2005-2007, ending at release of Initial Implementation Working Group recommendations.
Acronyms:
CAREB = Canadian Association of Research Ethics Boards
CIHR = Canadian Institutes of Health Research
NCEHR = National Council on Ethics in Human Research
NSERC = Natural Sciences and Engineering Research Council of Canada
PBPs = CIHR Privacy Best Practices
PRE = Interagency Advisory Panel on Research Ethics
SRE = Secretariat on Research Ethics
SSHRC = Social Sciences and Humanities Research Council of Canada
