Compendium of Canadian Legislation Respecting the Protection of Personal Information in Health Research - Updated June 2005

Edited and annotated by

Adam Kardash, partner, Heenan Blaikie LLP
Antonella Penta, associate, Heenan Blaikie LLP

Cat. No.: MR21-22/2005E-HTML
ISBN: 0-662-40903-5

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Table of Contents

Preface

  1. Application of selected Canadian privacy legislation
  2. Definitions of Personal Health Information and Personal Information
  3. Collection of personal (health) information
  4. Use and disclosure of personal (health) information for research purposes
  5. Elements and forms of consent & substitute decision-making
  6. Safeguarding, retention and destruction
  7. Data matching and data linkage
  8. Accountability and transparency in the management of personal (health) information
  9. Selected research-related provisions dealing with clinical records and registries in other legislation
  10. Legislated selected professional codes of conduct
  11. Canadian Charter of Rights and Freedoms and Charter of Human Rights and Freedoms (Quebec)
  12. Statutory tort of invasion of privacy

Annex: Web links to statutes referred to in the Compendium

This Compendium is a revised and updated version of the original text:

P. Kosseim, ed. Compendium of Canadian Legislation Respecting the Protection of Personal Information in Health Research (Ottawa: Public Works and Government Services Canada, 2000). 

Any revisions to the annotations in this 2nd edition do not necessarily reflect the views or the opinions of the original editor.