Canadian Fabry Disease Initiative Study: Independent Scientific Oversight Committee
ISOC Members
Scientific Members
Dr. Joseph Muenzer (Chair)
Professor of Pediatrics & Genetics
University of North Carolina at Chapel Hill
United States of America
Dr. Edmond Wraith
Consultant Paediatrician
Willink Biochemical Genetics Unit
Royal Manchester Children’s Hospital
England
Dr. Carla Hollak
Internist, Department of Internal Medicine
Division of Endocrinology and Metabolism
Academic Medical Center
Amsterdam
The Netherlands
Dr. Grant Mitchell
Researcher
Service de génétique médicale/Service of Medical Genetics
Centre hospitalier universitaire mère-enfant (CHU) Sainte-Justine
Montréal, Québec
Canada
Ex-officio Members
Health Canada
Stephanie Priest (to October, 2008)
Senior Policy Advisor
Pharmaceutical Policy
Health Care Policy Directorate
Health Canada
Amanda Moir (from October, 2008)
Senior Policy Analyst
Pharmaceuticals Management Strategies
Strategic Policy Branch
Health Canada
Angie Wong (to May, 2009)
Senior Manager
Pharmaceutical Services Coordination
Public Drug Programs
Ontario Health and Long-Term Care
Brent Fraser (from May, 2009)
Director
Drug Program Services
Public Drug Programs
Ontario Health and Long-Term Care
Fonds de la recherche en santé du Québec (FRSQ)
Dr. Louise Roy
Department of Nephrology
Hospital St-Luc of CHUM
Montréal, Québec
Canadian Institutes of Health Research (CIHR)
Stephanie Robertson (to February, 2009)
Assistant Director
Institute of Genetics
Canadian Institutes of Health Research
Allison Jackson (from February, 2009)
Assistant Director
Institute of Genetics
Canadian Institutes of Health Research
Secretariat
Irwin Schweitzer
Trials Officer
TI - Program Delivery
