Appendix F: Individuals Interviewed
[ Table of Contents ]We thank all who responded to our request for an interview and took their valuable time to share their impressions and opinions with us. Your passion for and commitment to PELC research is impressive and powerful. We have presented selected verbatim quotations (lightly edited for ease of comprehension) from these interviews, without attribution, in the main report and some of the appendices, but any interpretations drawn from your comments are entirely the responsibility of the authors.
| Name | PELC roles* | Organization |
|---|---|---|
| Nicole Austin | NET staff | Research Coordinator PedPalNET |
| Doris Barwich |
Decision-maker partner - NET | Medical Director Hospice Palliative/ End-of-Life Care Fraser Health Authority |
| Sharon Baxter | Consumer | CEO Canadian Hospice Palliative Care Association |
| Barbara Beckett | Institute partner | Assistant Director CIHR Institute of Neurosciences, Mental Health and Addiction |
| Kirsten Bell | NET - New Investigator | Research Associate, Anthropology University of British Columbia Adjunct Professor, Faculty of Health Sciences Simon Fraser University |
| Neil Berman | IAB Stakeholder |
Director, Business Development BC Cancer Agency |
| Harvey Bosma | NET Trainee | Doctoral Research Trainee School of Social Work and Family Studies University of British Columbia |
| Phil Branton | ICR Scientific Director - past | Gilman Cheney Professor Department of Biochemistry McGill University Visiting Scientist, Cancer Research-UK |
| Heather Bryant | IAB Stakeholder |
Vice-President, Cancer Control Canadian Partnership Against Cancer |
| Roy Cameron | IAB | Executive Director Centre for Behavioural Research and Program Evaluation University of Waterloo |
| Jennifer Campbell | Partner | Assistant Director, Strategic Research Initiatives Heart and Stroke Foundation of Canada |
| Sharon Carstairs | Consumer | Senate of Canada Special Committee on Aging |
| James Cleary | Peer reviewer International - US |
Associate Professor of Medicine, Medical Oncology University of Wisconsin Director Palliative Medicine, UW Hospital and Clinics Academic Medical Director, HospiceCare Inc. |
| Charles Cleeland |
International - US | Chair, Department of Symptom Research University of Texas M.D. Anderson Cancer Center |
| Harvey Chochinov Deborah Stienstra |
NET PIs CIHR-GC (HC) WG (HC) |
Canada Research Chair in Palliative Care Professor, Disability Studies University of Manitoba |
| S. Robin Cohen | STIHR – PI NET – PI WG |
Research Director and Associate Professor Departments of Oncology and Medicine McGill University |
| Jane Cope Karen Groot |
International – UK | Administrative Director Scientific Programme Manager National Cancer Research Institute |
| Jim Derksen |
NET - Community partner | Disability community consultant Policy advisor to Council of Canadians with Disabilities |
| Jean-François Desbiens | Trainee – STIHR | Doctoral Candidate School of Nursing Universite Laval |
| Richard Doll Arminée Kazanjian |
NET – PIs Peer reviewers IAB |
Director, Sociobehavioural Research Centre Provincial Leader, Cancer Rehabilitation Professor, Department of Health Care and Epidemiology, University of British Columbia |
| Wendy Duggleby | Pilot project Peer reviewer NET collaborator |
Professor, Faculty of Nursing University of Saskatchewan |
| Konrad Fassbender | Pilot project WG Peer reviewer NET collaborator |
Division of Palliative Care Medicine Department of Oncology University of Alberta |
| Margaret Fitch | IAB WG |
Head, Oncology Nursing & Supportive Care Toronto Sunnybrook Regional Cancer Centre University of Toronto |
| Bruno Gagnon |
Pilot project NET collaborator |
McGill Cancer Nutrition-Rehabilitation Program Assistant Professor, Medicine and Oncology McGill University Division of Clinical Epidemiology, Royal Victoria Hospital |
| Ilana Gombos | Institute partner | Assistant Director CIHR Institute of Circulatory & Respiratory Health |
| Eva Grunfeld | Pilot Projects ICE Co-Investigator |
Director, Knowledge Translation Research, Health Services Research Program Cancer Care Ontario/ Ontario Institute for Cancer Research |
| Neil Hagen | NET PI Peer reviewer WG |
Head, Division of Palliative Medicine University of Calgary |
| Mary Hampton | Researcher Peer reviewer |
Professor of Psychology, Luther College University of Regina |
| Melissa Henry | Trainee – STIHR | Department of Psychology McGill University |
| Peter Kirk | NET - PI | Clinical Professor, Department of Family Practice University of British Columbia Island Medical Program, University of Victoria |
| Julie Lachance | Partner WG |
Senior Policy Analyst Palliative and End-of-Life Care Health Canada |
| Dan Le | NET Decision-maker partner | Project Manager Northern Cancer Control Strategy Northern Health (BC) |
| Neil MacDonald | IAB WG NET collaborator |
Director, Cancer Nutrition/Rehabilitation Program Professor, Departments of Oncology and Medicine McGill University |
| Pascale Macgregor | Partner | Research Program Director Canadian Breast Cancer Research Alliance |
| Vera Mazurak | NET – New Investigator Peer reviewer |
Assistant Professor Agriculture, Food and Nutritional Science University of Alberta |
| Linda Mealing | Partner – Institute | Associate Director Canadian Longitudinal Study on Aging Canadian Institutes of Health Research |
| Anita Mehta | Trainee – STIHR | School of Nursing McGill University |
| Leslie Mery | IAB Stakeholder |
Program Director Surveillance Action Group Canadian Partnership Against Cancer |
| Mary Ann Murray | STIHR - Trainee | Doctoral Candidate School of Nursing University of Ottawa |
| Kärin Olson |
Researcher |
Professor Faculty of Nursing U Alberta |
| Morag Park | ICR Scientific Director |
Scientific Director CIHR |
| Pat Porterfield | NET Decision-maker partner | Regional Leader, Palliative Care Vancouver Coastal Health |
| Svetlana Ristovski-Slijepcevic | NET - Staff | Research Coordinator Sociobehavioural Research Centre Research Associate, Department of Sociology University of British Columbia |
| Graeme Rocker | NET Co-Investigator Peer reviewer |
Division Head Professor of Medicine Dalhousie University |
| Elisabeth Ross | Partner | Chief Executive Officer National Ovarian Cancer Association |
| Mary Rykov | STIHR - Trainee |
Research Fellow of the Canadian Cancer Society Departments of Oncology & Medicine McGill University, |
| Kelli Stajduhar |
NET PI Peer reviewer |
Assistant Professor School of Nursing, Centre on Aging University of Victoria |
| Ann Syme | NET - Trainee |
Doctoral Candidate Director, Pain & Symptom Management/ Palliative Care BC Cancer Agency |
| Teresa Tate |
International - UK | Medical Adviser Marie Curie Cancer Care |
| Carolyn Tayler | NET Decision-maker partner | Director, Hospice Palliative and End of Life Care Fraser Health (BC) |
| Jacqueline Tetroe |
CIHR staff - KT | Senior Advisor Knowledge Translation |
| Theresa Marie Underhill | Partner | Chief Operating Officer Cancer Care Nova Scotia |
| Allison Williams |
ICE – PI NET – Co-Investigator |
Associate Professor, School of Geography and Geology McMaster University |
| James Woodgett | IAB | Director of Research Samuel Lunenfeld Research Institute |
| Michael Wosnick |
Partner | Vice-President, Research, Canadian Cancer Society Scientific Director Canadian Cancer Society Research Institute |
* Role abbreviations:
IAB: ICR Institute Advisory Board
Peer reviewer: includes PLC open grants panel, RFA-specific panel and ad-hoc reviewers
GC: CIHR Governing Council
PI: Principal Investigator
WG: ICR and/ or joint ICR/ Health Canada PELC research working group member
Partner: Initiative funding partner with ICR